Supported Studies:
Concepts Developed 22-23
PoCoG-2022-01: First Nations Australians and head and neck cancer: Mapping service use, patient journeys and co-designing culturally safe cancer services and survivorship care.
Aim: To map the experiences of First Nations people, and their families, following a diagnosis of head and neck cancer. Map the acute and post-acute health care service utilisation and needs of First Nations people with HNC and their families, and examine if difference exist by remoteness and understand the health professional perspectives of delivering culturally responsive, person-centred cancer care to First Nations people and their families.
Team: Bena Brown, Gail Garvey, EC Ward, R Nund, Daniel Lindsay, A Jansen.
PoCoG-2021-06: BRIDGES-4AYA: An online information resource to bridge the gaps between treatment and education/ employment for Adolescent and Young Adults (AYAs) with cancer.
Aim: To develop an online information resource to bridge the gaps between treatment and education/ employment for Adolescent and Young Adults (AYAs) with cancer.
Team: Joanna Fardell, Sarah Ellis, Ursula Sansom-Daly, Pandora Patterson, Jennifer Chard.
PoCoG 2021-03: Assessing the acceptability, feasibility and utility of a nurse-led survivorship program for patients with metastatic melanoma who are long-term responders to immunotherapy or targeted therapy: a pilot study.
Aim: To assess the acceptability, feasibility and utility of a nurse-led survivorship program for patients with metastatic melanoma who are long-term responders to immunotherapy or targeted therapy.
Team: Julia Lai Kwon.
PoCoG-2022-02: RT-ePrepare: development and feasibility of a novel web-based psycho education intervention for people requiring immobilisation masks during radiotherapy.
Aim: To trial (using a large-scale multistate step-wedge design) online education combined with virtual communication skills workshop for RTs and implementing distress screening prior to commencing radiotherapy.
Team: Georgia Halkett, Haryana Dhillon, Penelope Schofield, Moira O’Connor, Dion Forstner, Elizabeth Coyne.
PoCoG-2022-11: Improving consistency and equity of care for fear of cancer recurrence through an evidence-based, culturally sensitive and implementation-ready clinical pathway.
Aim: To develop and pilot the implementation of a culturally sensitive clinical pathway for fear of cancer recurrence (FCR).
Team: Ben Smith, Afaf Girgis, Jo Shaw, Gail Garvey, Natalie Taylor, Jenny Liu, Alison Pearce, Laura Kirsten, Heather Shepherd, Annie Miller, Iman Zakhary, Uncle John and Aunty Liz Dickson, Orlando Rincones.
PoCoG-2022-12: FearLess Phase III - A stepped care intervention for fear of cancer recurrence in people with Stage III or IV melanoma.
Aim: To evaluate the efficacy and cost-effectiveness of Fear- Less in reducing FCR in advanced melanoma patients who are experiencing elevated FCR, using a multi-centre RCT design with in-built economic evaluation.
Team: Iris Bartula, Robyn Saw, Maria Ftanou, Jemma Gilchrist, Skye Dong, John Chalmers, Lisa Gomes, Ben Smith, Mbathio Dieng, Serigne Lo, Mandy McGrath, Tran Mei, Grace Kouvelis.
PoCoG-2022-13 Transforming colorectal cancer survivorship with digital delivery of multi-disciplinary care.
Aim: to demonstrate effectiveness of a telehealth-delivered MDT survivorship clinic (e-MDT); testing implementation, and measuring uptake, outcomes, access, acceptability, scalability, and costs.
Team: Janette Vardy, Haryana Dhillon, Adrian Bauman, Meera Agar, Natalie Taylor, Eng-Siew Koh, Richard De Abreu Lourenco, Kylie Vuong, Cindy Tan, Joanne Shaw.
PoCoG-2021-05: Optimising equitable access to cancer research participation for Aboriginal and Torres Strait Islander people: Development of culturally-responsive resources to guide informed decision-making.
Aim: To codesign resources - an information package, question prompt list, and decision aid to be responsive to the needs of Australia’s First Nations people considering participation in cancer research; and confirm resource acceptability/appropriateness.
Team: Bena Brown, Joanne Shaw, Gail Garvey, Bronwyn Morris, Joan Cunningham, Euan Walpole, Rowena Ivers, Michael Jefford, John Gilroy.
PoCoG-2023-01: A two-arm non-randomised cohort multi-centre validation study using magnetic resonance imaging (MRI) and pathological features to select patients with early breast cancer for omission of post-operative radiotherapy.
Aim: A two-arm non-randomised cohort multicentre validation study using magnetic resonance imaging (MRI) and pathological features to select patients with early breast cancer for omission of post-operative radiotherapy. Women aged ≥50 with histologically diagnosed unilateral, unifocal invasive primary breast cancer, T1, non-triple negative, pN0, M0, any grade, radial margins must be ≥2 mm clear of invasive cancer and any DCIS; good performance status (0-2) and no contraindications for MRI.
Team: Lesley Stafford, Bruce Mann
PoCoG-2023-02: MenoPeace : a holistic evidence-based psychosocial intervention
Aim: Exploring and addressing the psychosocial impact of treatment-induced menopausal symptoms in women treated for gynaecological and breast cancer
Team: Emma Minchin, Suparna Karpe, Laura Kirsten, Ilona Juraskova